Chronic Care Foundation
New Delhi : Chronic kidney diseases are one of the most important non-communicable disease ...
New Delhi : Chronic kidney diseases are one of the most important non-communicable disease epidemics in the world, including India. In an effort to educate parents and/or care givers of children suffering from kidney diseases, Chronic Care Foundation in association with Pediatric Nephrology Division, Institute of Child Health, Sir Ganga Ram Hospital and Indian Academy of Pediatrics, Central Delhi Branch, organized a Parent Awareness Camp on March 13, 2011 at Sir Ganga Ram Hospital. The event was accompanied by a Drawing and Painting Competition for children. Over 60 children including those suffering from kidney diseases participated in the event; and expressed their views on this condition through their innovative work of art.
The event was jointly sponsored by Chronic Care Foundation, a leading Non government organization in New Delhi. Working towards creating awareness and educating communities on prevention of non communicable chronic diseases, Chronic Care Foundation, is glad to take this joint initiative with Pediatric Nephrology Division, Institute of Child Health, Sir Ganga Ram Hospital said Dr. Ratna Devi, CEO, Chronic Care Foundation. She also added that the event would prove a vital platform to inform and educate the parents and/or care givers of children suffering from kidney diseases and people who are at high risk of Chronic Kidney Disease that such disease are treatable, provided care is availed at the right time and in the right manner.
Chronic illness of any kind in children is troublesome for both parents and children. One of the important steps in managing any child with chronic kidney disease is making the parents accept the fact that their child is suffering from such a disease and then educating them regarding the disease. This initial effort goes a long way in the appropriate management of the child says Dr. P.K. Pruthi, Senior Pediatric Nephrologist, Institute of Child Health, Sir Ganga Ram Hospital. He added Parents anxieties are related to the tests required for diagnosis, procedures, medications, care of the child, financial considerations and ultimate outcome. It is therefore essential to educate the care givers about early detection and treatment facilities available.
Parents/ care givers of children suffering from kidney diseases may not be able to identify any symptoms until they reach critical kidney failure. Many of kidney diseases can be diagnosed before a baby is born through ultrasonography of the mother. These problems can be followed up antenatally as well as once the child is born and adequate management can be provided as and when required. Other problems that may emerge later as the child grows are:
– Swelling of the hands and feet and/or puffiness around the eyes
– Decreased or increased frequency of urination
– Dribbling of urine or a poor urinary stream
– Bed wetting
– Headaches resulting from high blood pressure
– Anemia, growth retardation, bony abnormalities
If your child has any signs or symptoms that are suggestive of kidney disease, you should consult your pediatrician at the earliest” said Dr. Kanav Anand, Pediatric Nephrologist, Institute of Child Health, Sir Ganga Ram Hospital, The earlier the problem is detected, the sooner it can be treated so as to prevent its hazardous complications.
While treatment for kidney diseases mandates medical intervention, diet modification is equally important. Discussing special diet in renal diseases, Mrs. Kanchan Sondhi, Dietician, Sir Ganga Ram Hospital, asserted that diet modifications should be strictly adopted and not considered as an option. She also asserted upon the need to follow a balanced diet plan in our day to day life.
Treating children with kidney diseases is a goal we share with the international pediatric nephrology association (IPNA) concluded Dr. Kanav Anand, Pediatric Nephrologist, Institute of Child Health, Sir Ganga Ram Hospital. If your child develops kidney failure, we have all the specialized modalities to treat it as against the facilities that were there around a few decades back. We have been able to do hemodialysis in an infant as well as peritoneal dialysis in a pre term child. In recent times even renal transplantation is possible in children who have an average weight of 10-15 kgs.
Chronic kidney disease (CKD) is characterized by an irreversible deterioration of renal function that gradually progresses to end-stage renal disease (ESRD). CKD has emerged as a serious public health problem worldwide. In the past decade, the incidence of the chronic kidney disease in children has steadily increased, with poor and ethnic minority children disproportionately affected. The major health consequences of chronic kidney disease include not only progression to kidney failure but also an increased risk of cardiovascular disease. Guidelines support early recognition and treatment of CKD and related complications, to improve growth and development and, ultimately, the quality of life in children with this chronic condition
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